My True Partner
- by Judy R.
- November 28, 2016
Judy R. is a paid Advocate for Teva Neuroscience, Inc.
How my husband became a wonderful partner for managing my RRMS.
In sickness and in health… When we exchanged those vows during our wedding 43 years ago, we were both young, healthy, looking forward to our future and so much in love. The thought of one of us having a chronic illness never crossed our minds. We have had many healthy years and felt blessed.
When I received my relapsing-remitting MS diagnosis in my 50s, my husband, Steve, seemed to accept his role as my care partner as he did most challenges in his life. He "just dealt with it" with patience, love and kindness. We had our moments of fear of what the future might hold, but we learned that with RRMS, you have to take it one day at a time — and that became our goal.
Initially, Steve may have been "overprotective" in some of his caregiving, but we were navigating uncharted territory in managing this new challenge in our lives. We sat even closer on the couch and held hands a lot. We pulled together as my RRMS ebbed and flowed over the years, and we developed a routine depending on what was happening in our family, work and other activities. I went from being an early morning riser to a not-so-early riser. My energy level would wind down early in the day, especially during the warmer seasons. I had relinquished more and more of my former household responsibilities, and Steve had accepted them without complaint. For example, Steve would stop by the grocery store to pick up a few things on his way home from the office whenever I needed him to. He has never been a complainer, but I was feeling guilty and wanted to do what I could, when I could, to feel more productive. I know I am blessed to have a willing, loving care partner. Because of Steve's loving care, I am able to do the things that are important to me.
My new normal is not always the same. Some days, I have to ask for help a little earlier than I would like… when that happens, Steve steps in to pick up the slack. On days where I have more reserve, we make the best of it and I do more – we celebrate that "more!”
It's sometimes difficult to accept that some days you're the "doer" and some days you are not. I have a care partner in Steve, who loves me right where I'm at, and I am thankful every day for that.
COPAXONE® (glatiramer acetate injection) is a prescription medicine that is used to treat relapsing forms of multiple sclerosis (MS), to include clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease, in adults.
Do not use COPAXONE® if you are allergic to glatiramer acetate or mannitol.