Helping My Care Partner Help Me
- by Dana B.
- August 13, 2018
Dana B. is a paid Advocate for Teva Neuroscience, Inc.
“It takes a village.” We’ve all heard that statement before, probably in the context of raising a child. In my case, the saying applies to living with relapsing-remitting multiple sclerosis (RRMS).
On my journey of living with RRMS, my “village” is made up of my doctors, nurses, family, friends and even my dogs provide support. My village represents an amazing support system I am very lucky to have, but my family sees how RRMS affects me daily. They see my happy times and my sad times; and they see me when I’m anxious and uncertain. Their unconditional love and devotion gives me so much strength.
Since my RRMS affects all of my village, I want to make sure they understand what I go through on a day-to-day basis. It’s important that I’m on and committed to the right therapy for me , and I want them to understand my routine for managing my RRMS.
There are times when I experience pain or stress, and I communicate to my family so they know what I’m going through and maybe they can even help. For example, there are times when I may experience intolerance to heat, so I think it’s only fair that I share any issues with my Care Partners so they’re aware. After all, it takes a village.
I like to have my husband or parents attend doctor visits and educational meetings with me because they may remember to mention certain questions or concerns I might have forgotten. Together, as part of the same village, we help each other to remember important details along our journey.
I hope my Care Partners know how much they mean to me. Their strength, love, and support help me obtain normalcy, or my “new normal,” and even thrive on this journey.
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