A Caregiver’s Perspective: Family and MS
- by Steve R.
- December 18, 2017
Steve R. is a paid Advocate for Teva Neuroscience, Inc.
At the time of my wife Judy’s RRMS diagnosis, we were a small family. It was Judy and I, our two married sons, and no grandchildren. The first real “team meeting” came at Christmas after Judy had been diagnosed for about a month, and the typical tears, fears, and expectations were expressed. That’s also when our lifelong journey, as a family, with RRMS had officially become a reality.
Since that time, our family has been blessed with the addition of seven grandchildren. Our family is somewhat scattered in two cities about 1,000 miles apart, but our commitment to spending time together remains strong. And everyone in the family is committed to learning and understanding all we can about RRMS, which includes learning the specifics of the disease, but more importantly, how the disease impacts Judy’s life. We all try to take advantage of informational resources and our own experiences that we share with each other.
This learning experience has also allowed us to make subtle changes in our lives to accommodate RRMS without calling unwanted attention to it. For example, our young grandchildren require so much energy! Judy is not one to “sit it out” so when we are with the grandchildren planning rest time, scheduling activities during cooler times of the day, and going to bed early have become regular accommodations we make as part of our routine together that help reduce stress levels for everyone.
We really enjoy sharing our story. This allows us to offer encouragement and friendship to others in the MS community, since we’ve all been affected by MS and can relate to one another. We hope you continue to join us here and read our stories.
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