My Caregiver Story: A Day in the Life
- by Paul L.
- March 19, 2018
Paul L. is a paid Advocate for Teva Neuroscience, Inc.
Being a caregiver for my wife, Andrea, who has relapsing-remitting multiple sclerosis (RRMS), has been a challenging yet rewarding experience. As Andrea’s caregiver, I learned many years ago that each day with RRMS is different. Over the years, my mindset has shifted from wanting to “fix” Andrea’s RRMS to learning about the disease, how it affects her, and helping her manage her specific symptoms. I feel blessed to be on this journey with Andrea.
Our average day starts with Andrea taking a walk around our neighborhood, which is something she looks forward to when she wakes up. After that, we have coffee, get our daughter ready for school and go to work. Between our careers and taking care of our daughter, we usually get through the day just like most other people do.
My caregiving “activities” really kick off after work. A long time ago, I learned to to take some of the burden off of her and do things to make our home more RRMS-friendly. Every day I make sure to do whatever I can to help her, allowing her to rest and do other things she enjoys, like spending time with friends and family.
I have also observed that Andrea’s RRMS affects her more in the afternoon and evening each day, so that’s when I try to pitch in more and lend a helping hand. Whether I’m picking up our daughter from school, making dinner, or getting our lunches and coffee ready for the next day, I know those are the times my wife needs me most.
Being a caregiver is hard work and a “day in the life” is different for all caregivers. None of us have the same story, but all of us want to help a loved one. My advice to other caregivers is simple: Don’t give up. I believe we are key advocates and supporters for those living with diseases such as RRMS. However, it’s important to try not to do everything for our loved ones. You might be surprised how strong they are and what they can achieve, even without you.
Register today to receive updates and recaps as from Teva’s Lift MS® blog.